25-07-2013 9:30 AM
Right, lad has got his forms to fill in and, unlike the computer model, there's a box to fill in if condition varies. Looks just like the old DLA forms to me, tick "varies" and attach multiple A4 sheets(handwritten naturally) giving full details? ie worst case scenario and how often it occurs(also variable, except when stressed!)
Thought this "new" system was about personal assessments for all. Seems you need to be good at form filling(as per DLA)just to get the assessment. Or have I missed something?
Thank you
25-07-2013 6:04 PM
PS. Having pulled off the new Dla replacement assessment forms can we ask for a re-assessment as his needs in a city are a whole lot more than mid Wales?. Been checking through and if they do the assessment the way they say they do he'll be be on a winner but he isn't due for re-assessment until 2015
25-07-2013 6:46 PM
Apparently, ATOS may be on the verge of losing the contract with the DWP. Apparently, some of their health care assessors can be physiotherapists. Now, correct me if I am wrong but I don't think that physios have much of an idea regarding mental health issues.
Even if your son finally manages to go for the assessment, he will be found fit for work at the work capability assessment. 99.9% of people are even people who are terminally ill!!
25-07-2013 6:49 PM
Meant to add, when your son finally goes for an assessment, go with him and take notes. Make a note of the time that you get to the centre. Also, make notes of the time you get in to see the assessor, what the assessor says and what time you leave. Before you start though, ask to see the assessors qualifications. That should waken them up a bit!!
25-07-2013 7:49 PM
@guardpig wrote:Right, lad has got his forms to fill in and, unlike the computer model, there's a box to fill in if condition varies. Looks just like the old DLA forms to me, tick "varies" and attach multiple A4 sheets(handwritten naturally) giving full details? ie worst case scenario and how often it occurs(also variable, except when stressed!)
Thought this "new" system was about personal assessments for all. Seems you need to be good at form filling(as per DLA)just to get the assessment. Or have I missed something?
Thank you
I have just done the limted capacity for work forms for both lads, as they have to transfer from incapacity benefit to ESA.
I was told that if there is sufficient "evidence" from the form, then a personal asessment will not be needed. I made it clear on the additional information that a personal asessment would cause a great deal of distress to both lads, and that given the level of commuication difficulty, would add nothing.
I did the forms in exactly the same way as the DLA forms - I ticked "it varies" on almost very question, and then wrote in the box "see attached statement". I then opened a word document, typed their questions in bold, then inserted my answers, giving as much detail as I could. For instance under the bit about seizures, I pointed out that although seizures are infrequent, they are unpredictable, occur with no warning, can occur in the middle of crossing a road, and that neither young chap can get himself to a place of safety following a seizure, so he has to have a skilled and experienced member of staff with him to support and assist. I pointed out that when a seizure does occur it generally results in a loss of control of bladder and often a loss of control of bowels.
I really went to town on the "behaviour" section - even pointed out that neither young man has any sexual awareness, or any understanding of the concept of "private" body parts, that both are as likely to touch a female on the bosom or back side without this having any more significance than them touching on the arm. I pointed out in detail how this lack of awareness and understanding can easily be misinterpreted.
I made sure that the attached statement had a header with the name, date of birth, nat ins number and a footer with the date and page x of y.
Whether this approach will work remains to be seen.
25-07-2013 7:55 PM
@guardpig wrote:PS. Having pulled off the new Dla replacement assessment forms can we ask for a re-assessment as his needs in a city are a whole lot more than mid Wales?. Been checking through and if they do the assessment the way they say they do he'll be be on a winner but he isn't due for re-assessment until 2015
You CAN ask for a re-assessment any time you like, especially if you feel that you have "evidence" that his needs have increased. However, you need to bear in mind that any re-assessment could result in his award being cut or even stopped altogether, and you could have a huge fight to get any decision changed.
Do you really trust them to do anything the way that they they will?
Under the new system, I think the mobility section is going to be a real pig for both of my lads.
25-07-2013 8:13 PM
Ah, books - go with him. It is a fit to work assessment - he should go alone(not that he would get that far). After all how many 22 year olds have Mummy going to work with them? It all seems a bit daft to me.
Stroppy, Son looked at the form and said he couldn't find one question that he didn't need to answer with it varies. So it's back to creatively and realistically answering every question with the same answer.. I'll be a digging out the last DLA form.
Dla is the key so is it easy to get a re-assessment. Even describing a good day(on their form) comes out with enough points for enhanced care and enhanced mobility. He gets low on both but really needs to qualify for the higher disability premium which could increase his HB to a level at which he could pay his rent. Before anybody jumps on me - this is saving taxpayers money - our council have already agreed he needs an assisted living placement which costs oodles!..
Think the cheapest way would be for him to murder somebody - then he could probably do his MA and PhD for free whilst enjoying solitary confinement, 3 square meals a day, gentle exercise and no costs!.Ironic isn't it.
25-07-2013 8:29 PM
@stroppy*cow wrote:
@guardpig wrote:PS. Having pulled off the new Dla replacement assessment forms can we ask for a re-assessment as his needs in a city are a whole lot more than mid Wales?. Been checking through and if they do the assessment the way they say they do he'll be be on a winner but he isn't due for re-assessment until 2015
You CAN ask for a re-assessment any time you like, especially if you feel that you have "evidence" that his needs have increased. However, you need to bear in mind that any re-assessment could result in his award being cut or even stopped altogether, and you could have a huge fight to get any decision changed.
Do you really trust them to do anything the way that they they will?
Under the new system, I think the mobility section is going to be a real pig for both of my lads.
Not sure we have a choice but NO I don't trust them. After all the ESA computer doesn't even have Ataxia on it and no, vertigo, doesn't hack it - letter to MP already written... The mobility section as it appears to stand is a doddle for mine. He would struggle to get above low rate care on the old system but the new points system appears to indicate otherwise. He needs the extra money. Circumstances have changed and his problems are stress, diet and environment driven. He is going to need an awful lot of help to cope in a large university in a city. In fact he needs an awful lot of help to cope here. Wales was very good for him only he really cannot afford to go back there!
25-07-2013 8:35 PM - edited 25-07-2013 8:36 PM
Benefits is no longer my main area of expertise, and being off long-term sick I don't have the same access to the "experts" that I usually have.
However, my understanding (which could be wrong), son (with your support) needs to write and request a re-assessment as his needs have changed. It USED to be pretty simple, but that is no guarantee that they haven't changed things.
As to going with him to any assessment, I would certainly go with him and make it abundantly clear that there is no way that he could have got there without your support. I would make it very clear on the assessment form that there is absolutely no way that he could get there without assistance.
"After all how many 22 year olds have Mummy going to work with them?"
Be VERY careful, they will twist this to mean that he is perfectly capable WITH SUPPORT and they will argue that a personal assistant can be employed funded through access to work. The fact that he lacks the skills to be an effective employer will be swept aside.
Who wants to be "normal" - after all, I drag my husband to work with me on a semi-regular basis.
25-07-2013 9:13 PM
Will be very careful, Stroppy. This is his future.
Naturally I will go with him and behave myself for once. Might even ditch the crocs for real shoes. Dress up or down do you think? His normal state from choice is grubby, untidy, uncombed, unshaven though he does clean up beautifully..
Finding my way round the benefits but it all takes so long and so much of my time and time we don't have. If only one could claim in advance and start collecting if one needed it!.
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Thanks for the advice hope your strategy works for your lads.
25-07-2013 9:27 PM
@guardpig wrote:Will be very careful, Stroppy. This is his future.
Naturally I will go with him and behave myself for once. Might even ditch the crocs for real shoes. Dress up or down do you think? His normal state from choice is grubby, untidy, uncombed, unshaven though he does clean up beautifully..
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I would dress down, go with his choice - grubby, untidy, uncombed, unshaven sounds great to me - after all that's the way youngsters seem to turn up for job interviews these days.
As for yourself, they aren't supposed to be judging you, I would go dressed however you are comfortable. As long as I am clean, folks have to tak eme the way that they find me, and I only ever behave one way (usually badly).